Like every parent, we all could do with some more 'Me Time' but I didn't think my dose of my me time would be spent in hospital whilst...

As part of World Heart Rhythm Week 2022, Joe & I were fortunate enough to be invited to the Palace of Westminster by Arrhythmia Alliance...

This post is long overdue and has been in the making since last September! Anyone who knows me knows my time is pretty much constantly...

It’s been another exhausting and emotional time for us lately (well all this year actually), this time with our little superstar Harper...

As promised, here's a few links that have been in the press sharing our fundraising story and raising awareness for Brugada Syndrome....

Darcie's Brugada came from me - her Mom - disproving a lot you read about Brugada and the prevalence and origin of it... Shocking as it...

We are extremely proud to share that we have donated a grand total of £2,320 to charity thanks to all of our generous supporters!...

Nearly 11 hours, 30 miles, 67 thousand steps and lots of aches and pains later we smashed it! Just like we did when we doubled our target by

Two beautiful identical twin girls, one has Brugada and the other...well at this point we just don't know if she has it or not. Brugada...

Charity walk this weekend 11th July

Amid Covid-19, Darcie had her second pacing appointment today at hospital, quite a concern when we haven't left the house for 10 weeks or...

Walking 6 miles at least every day in the comfort of my own home isn't because I'm trying to get fit after having twins - it's a...

We're working together with Arrhythmia Alliance Charity to publish Darcie's story through their media channels...more to come once...

Weʼre raising £2,500 to Raise money for an Automated External Defibrillator (AED) for our family & Arrhythmia Alliance Charity via our...

She's doing great!!! Darcie had her first pacing appointment which involved having a wand held over her S-ICD and 'interrogated' to...

And you'll soon find out that unless you meet a Cardiologist or have been diagnosed with Brugada or have a family member with it, no one...